Publications

Our Publications

On this page you can find a list of peer-reviewed journal articles by DIPEx International members based on our research over the last five years. While most articles are in English, you can also find papers in Czech, Dutch, German, Japanese, Korean and Norwegian.

You can sort the list by the first author’s surname or by the language the article is published in, and you can also use the search function at the top right of the table to search for particular words.

If you would like a copy of a particular article please contact us.

PublicationLanguage
2019
Johnston-Ataata, K. (2019) Reflecting on the past: The role of biographical, familial and social memory in new mothers’ interpretation of emotional experiences in early parenthood. In Pascoe Leahy, C. and Bueskens, P. (Eds.) Australian Mothering: Historical and Sociological Perspectives. Singapore: Palgrave MacMillanEnglish
Stone M, Kokanovic R, Callard F & Broom A (2019) Estranged relations: Coercion and care in narratives of supported decision-making in mental healthcare. Medical Humanities. Published Online First: 30 July 2019. DOI: 10.1136/medhum-2018-011521English
Flore J, Kokanović R, Callard F, Broom A & Duff C (2019) Unravelling subjectivity, embodied experience and (taking) psychotropic medication. Social Science & Medicine. 230: 66-73.English
Brophy L, Kokanović R, Flore J, McSherry B & Herrman, H (2019) Community Treatment Orders and Supported Decision-Making. Frontiers in Psychiatry. 10: 414. DOI: 10.3389/fpsyt.2019.00414English
Eassey D, Reddel H, Ryan K & Smith L (2019) The impact of severe asthma on patients’ autonomy: A qualitative study. Health Expectations. 22: 528– 536.English
Eassey D, Reddel HK, Ryan K & Smith L (2019) Living with severe asthma: the role of perceived competence and goal achievement. Chronic Illness. Published Online First: 25 October 2019. DOI: 10.1177/1742395319884104English
Eassey D, Reddel HK, Ryan K & Smith L (2019) Barriers to belonging: The need for relatedness amongst people living with severe asthma. Journal of Asthma. 1-9. DOI: 10.1080/02770903.2019.1656230English
Alam R, Montanez J, Law S, Lee L, Pecorelli N, Yusuke W, Luciana CD, Falconi M, Satoshi H, Mayo N, Feldman L, Fiore J. (2019) Development of a conceptual framework of recovery after abdominal surgery. Surgical Endoscopy. Published online First: 1 August 2019. DOI: 10.1007/s00464-019-07044-x English
Breuning, M., Schäfer-Fauth, L., Lucius-Hoene, G., Holmberg, C. (2019). Connecting one’s own illness story to the illness experiences of others on a website - An evaluation study using the think aloud method. Patient Education and Counseling. DOI: 10.1016/j.pec.2019.08.014.English
Kikuchi K, Miki A, Satoh H, Iba N, Sato-Sakuma R, Beppu H, Sawada Y. (2019). Utility of an adverse drug event database based on the narrative accounts of patients with breast cancer. Drug Discoveries & Therapeutics. 13(4): 183-188. DOI: 10.5582/ddt.2019.01037.English
Nakada H, Yoshida S, Muto K. (2019). “Tell me what you suggest, and let’s do that, doctor”: Patient deliberation time during informal decision-making in clinical trials. PLoS ONE. 14(1): e0211338. DOI: 10.1371/journal. pone.0211338

English
Van Wijngaarden, E, Alma M, The AM. (2019) ‘The eyes of others’ are what really matters: The experience of living with dementia from an insider perspective. PlosOne, 14(4), e0214724.English
Andreassen, Hege Kristin (2019): Informasjonssystemer er fortellinger om pasienten. I: Hellesø, R. & Olsen RM (edt): Digitalisering i sykepleietjenesten – en arbeidshverdag i endring. Cappelen Damm Akademisk ISBN 978-82-02-63264-9 English translation: Andreassen, HK (2019): Information systems are stories about the patient. In Hellesø, R. and Olsen RM (edt): Digitalising the nursing services – a work environment in change. Cappelen Damm Akademisk. ISBN 978-82-02-63264-9 Norwegian
Farre, A., Ryan, S., McNiven, A., et al. (2019). The impact of arthritis on the educational and early work experiences of young people: A qualitative secondary analysis. International Journal of Adolescent Medicine and Health. DOI: 10.1515/ijamh-2018-0240English
Nagraj, S., Hinton, L., Praveen, D., Kennedy, S., Norton, R., Hirst, J. (2019) Women's and healthcare providers' perceptions of long‐term complications associated with hypertension and diabetes in pregnancy: a qualitative study. BJOG, 126 Suppl 4: 34-42. DOI: 10.1111/1471-0528.15847English
Locock, L., Kirkpatrick, S., Brading, L. et al. (2019) Involving service users in the qualitative analysis of patient narratives to support healthcare quality improvement. Research Involvement & Engagement. 5(1) DOI: 10.1186/s40900-018-0133-zEnglish
Mazanderani, F., Hughes, N., Hardy, C., Sillence, E. and Powell, J., (2019) Health information work and the enactment of care in couples and families affected by Multiple Sclerosis. Sociology of Health & Illness. 41(2): 395-410. DOI: 10.1111/1467-9566.12842English
Pandhi, N., Gaines, M., Deci, D., Schlesinger, M., Culp, C., Karp, Z., Legler, C., and Grob, R. (2019) Broadening Medical Students Exposure to the Range of Illness Experiences: A Pilot Experimental Curriculum Trial. Academic Medicine. DOI: 10.1097/ACM.0000000000002893. English
Grob, R. and Schlesinger, M. (2018). “When public and private narratives diverge: Experiences with newborn screening in the USA.” In G. Lucius-Hoene, C. Holmberg, and T. Meyer (Eds.) Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts. Oxford University Press: New YorkEnglish
2018
Eassey D, Reddel H, Foster J, Kirkpatrick S, Locock L, Ryan K & Smith L (2018) “...I’ve said I wish I was dead, you’d be better off without me”: A systematic review of people’s experiences of living with severe asthma. Journal of Asthma. 56(3): 311-322. DOI: 10.1080/02770903.2018.1452034. *English
Knight F, Kokanović R, Ridge D, Brophy L, Hill N, Johnston-Ataata K & Herrman H (2018) Supported Decision-Making: The Expectations Held by People With Experience of Mental Illness. Qualitative Health Research. 28(6): 1002-1015.English
Kokanović R, Brophy L, McSherry B, Flore J, Moeller-Saxone Kristen & Herrman H (2018) Supported decision-making from the perspectives of mental health service users, family members supporting them and mental health practitioners. The Australian and New Zealand Journal of Psychiatry. 52(9): 826-833. English
Stone M, Kokanović R, & Broom A (2018) Care(less) encounters: Early maternal distress and the haunted clinic. Subjectivity. 11(2): 108–127. DOI: 10.1057/s41286-018-0047-0English
Kokanović R, Michaels P & Johnston-Ataata K (eds.) (2018) Paths to Parenthood: Emotions on the Journey through Pregnancy, Childbirth, and Early Parenting. Singapore: Springer. DOI: 10.1007/978-981-13-0143-8English
Michaels P & Kokanović R (2018) The complex and contradictory emotional paths to parenthood. In Kokanović R, Michaels P and Johnston-Ataata K (eds.) (2018) Paths to Parenthood: Emotions on the Journey through Pregnancy, Childbirth, and Early Parenting. Singapore: Springer.English
Stone M & Kokanović R (2018) Narrating and disrupting postnatal depression. In Kokanović R, Michaels P and Johnston-Ataata K (eds.) Paths to Parenthood: Emotions on the Journey through Pregnancy, Childbirth, and Early Parenting. Singapore: Springer.English
Johnston-Ataata K, Kokanović R & Michaels P (2018) ‘One of the most vulnerable times in your life’: Expectations and emotional experiences of support in the early postnatal period. In Kokanović R, Michaels P & Johnston-Ataata K (eds.) Paths to Parenthood: Emotions on the Journey through Pregnancy, Childbirth, and Early Parenting. Singapore: Springer.English
Lucius-Hoene G, Holmberg C & Meyer T (Eds.) (2018) Illness Narratives in Practice. Potentials and Challenges of Using Narratives in Health-related Contexts. Oxford: Oxford University Press.English
Grob, R. and Schlesinger, M. (2018). “When public and private narratives diverge: Experiences with newborn screening in the USA.” In G. Lucius-Hoene, C. Holmberg, and T. Meyer (Eds.) Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts. Oxford: Oxford University Press.English
Law S, Ormel I, Loutfi D & Lavis J.(2018) Experience as evidence for healthcare policy. In: G. Lucius-Hoene, C. Holmberg, and T. Meyer (Eds.) Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts. Oxford: Oxford University Press.English
Lamerichs JMWL & Alma MA (2018) Drawing on narrative accounts of dementia in education care. In: G. Lucius-Hoene, C. Holmberg, and T. Meyer (Eds.) Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts. Oxford: Oxford University Press.English
Klůzová Kráčmarová L, Dutková K & Tavel P (2018) Everybody needs to believe in something: Spiritual beliefs of non-religious Czech adolescents. Psychology of Religion and Spirituality. DOI: 10.1037/rel0000217 .English
KLŮZOVÁ KRÁČMAROVÁ, L., DUTKOVÁ, K. (2018) What happens after death? Beliefs in an afterlife among religious and non-religious children in the Czech Republic. In Potměšilová, P. ÖbrinkHobzová, M. Mládež a hodnoty (Youth and Values). Olomouc: UniverzitaPalackého v Olomouci, 2018, s. 193-208. ISBN 978-80-244-5408-5.English
Adami S, Breuning M, Bengel J, Bischoff A & Peng-Keller S (2018) Chronische Schmerzpatientinnen und -patienten sprechen über ihre Spiritualität [Chronic pain patients talking about their spirituality: a qualitative analysis of interviews from “krankheitserfahrungen.de]. Spiritual Care. 7: 243–253. DOI: 10.1515/spircare-2018-0013. English translation: Adami S, Breuning M, Bengel J, Bischoff A & Peng-Keller S (2018) Chronic pain patients talking about their spirituality: A qualitative analysis of interviews from “krankheitserfahrungen.de". Spiritual Care. 7: 243–253. DOI: 10.1515/spircare-2018-0013. German
Blödt S, Kaiser M, Adam Y, Adami S, Schultze M, Müller-Nordhorn J et al. (2018) Understanding the role of health information in patients' experiences: Secondary analysis of qualitative narrative interviews with people diagnosed with cancer in Germany. BMJ open. 8: e019576. DOI: 10.1136/bmjopen-2017-019576.English
Lavie-Ajayi M & Shvartzman P (2018) Restored self: A phenomenological study of pain relief by cannabis. Pain Medicine. 20(11): 2086-93. DOI: 10.1093/pm/pny176.English
Nijnuis M & Alma M (2018) Parents' experiences with the diagnostic period of a rare disease in their child: An overview of the literature. Huisarts & Wetenschap. 61(9): 14.Dutch
Brenner M, O'shea M, McHugh R, Clancy A, Larkin P, Luzi D, Pecoraro F, Montanano Olasa E, Lignou S, Alma M, Satherley RM, Tamburis O, Warters A, Wolfe I, Hilliard C, Berry J, Alexander D, Rigby M & Blair M (2018) Principles for provision of integrated complex care for children across the Acute Community Interface in Europe. The Lancet Child & Adolescent Health, 2(11): 832-838.English
Ryan S (2018) Honouring a life and narrative work: John’s story. Arts and Humanities in Higher Education. 17(1): 58-68. DOI: 10.1177/1474022217729178English
Kirkpatrick S, Locock L, Farre A, Ryan S, Salisbury H & McDonagh JE (2018) Untimely illness: When diagnosis does not match age-related expectations. Health Expectations. 21(4): 730-740. DOI: 10.1111/hex.12669.English
Boylan AMR, Locock L, & Machin L (2018) From waste product to blood, brains and narratives: Developing a pluralist sociology of contributions to health research. Sociology of Health & Illness. 41(3): 585-600. DOI: 10.1111/1467-9566.12715.English
McNiven A (2018) ‘Disease, illness, affliction? Don’t know’: Ambivalence and ambiguity in the narratives of young people about having acne. Health. 23(3): 273-288. DOI: 10.1177%2F1363459318762035.English
Stevens RJ, Evans J, Oke J, Smart B, Hobbs FDR, Holloway E, Horwood J, Judd M, Locock L, McLellan J, & Perera R (2018) Kidney Age, not Kidney Disease. CMAJ. 190(13): E389-E393. DOI:10.1503/cmaj.170674.English
Stepney M, Kirkpatrick S, Locock L, Prinjha, S & Ryan, S (2018) A licence to drive? Neurological illness, loss and disruption. Sociology of Health and Illness. 40(7): 1186-1199. DOI: 10.1111/1467-9566.12754English
Hinton L, Locock L, Long A-M, & Knight, M (2018) What can make things better for parents when babies need abdominal surgery in their first year of life? A qualitative interview study in the UK. BMJ Open, 8(6) p.e020921. DOI: 10.1136/bmjopen-2017-020921English
Searle A, Neville P, Ryan S & Waylen A (2018) The Role of the Clinical Nurse Specialist From the Perspective of Parents of Children Born With Cleft Lip and/or Palate in the United Kingdom: A Qualitative Study. Clinical Nurse Specialist. 32(3): 121-8. DOI: 10.1097/NUR.0000000000000371.English
Darbyshire JL, Hinton L (2018) Using patient narratives to design an intervention to reduce noise in the Intensive Care Unit. The Journal of Health Design. 3(2). DOI: 10.21853/JHD.2018.51 English
2017
Pickles K, Eassey D, Reddel H, Locock L, Kirkpatrick S & Smith L (2017) "This illness diminishes me. What it does is like theft": A qualitative meta-synthesis of people's experiences of living with asthma. Health Expectations. 21(1): 23-40.English
Ridge D, Broom A, Kokanović R, Ziebland S & Hill N (2017) Depression at work, authenticity in question: Experiencing, concealing and revealing. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine. DOI: 10.1177/1363459317739437English
Moore D, Pienaar K, Dilkes-Frayne E & Fraser S. (2017). Challenging the addiction/health binary with assemblage thinking: An analysis of consumer accounts. International Journal of Drug Policy. 44: 155-163.English
Fraser S, Pienaar K, Dilkes-Frayne E, Moore D, Kokanović R, Treloar C & Dunlop A. (2017). Addiction stigma and the biopolitics of liberal modernity: A qualitative analysis. International Journal of Drug Policy. 44: 192-201.English
Pienaar K & Dilkes-Frayne E. (2017). Telling different stories, making new realities: The ontological politics of ‘addiction’ biographies. International Journal of Drug Policy. 44: 145-154.English
Dilkes-Frayne E, Fraser S, Pienaar K & Kokanović R. (2017). Iterating 'addiction': Residential relocation and the spatio-temporal production of alcohol and other drug consumption patterns. International Journal of Drug Policy. 44: 164-173.English
Treloar C, Pienaar K, Dilkes-Frayne E & Fraser S (2017) Lives of Substance: A mixed-method evaluation of a public information website on addiction experiences. Drugs: Education, Prevention and Policy. DOI: 10.1080/09687637.2017.1397602English
Tonsaker T, Law S, Ormel I, Nease C & Bartlett G (2017) Engaging caregivers: Exploring perspectives on web-based health information. Family Practice. 34(4): 479-484. English
Ormel I, Law S, Abbott C, Yaffe M, Saint-Cyr M, Kuluski K, Josephson D & Macaulay AC (2017) When one is sick and two need help: Caregivers’ perspectives on the negative consequences of caring. Patient Experience Journal. 4(1): 66-78.English
Breuning M, Lucius-Hoene G, Burbaum C, Himmel W & Bengel J (2017). Subjektive Krankheitserfahrungen und Patientenorientierung. Das Website-Projekt DIPEx Germany. Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz. 60: 453–461. DOI: 10.1007/s00103-017-2524-y. English translation: Breuning M, Lucius-Hoene G, Burbaum C, Himmel W & Bengel J (2017). Patient experiences and patient centeredness: The website project DIPEx Germany. Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz. 60: 453–461German, Abstract in English
Giesler J M, Keller B, Repke T, Leonhart R, Weis J, Muckelbauer R et al. (2017) Effect of a website that presents patients' experiences on self-efficacy and patient competence of colorectal cancer patients: Web-based Randomized Controlled Trial. Journal of Medical Internet Research.19: e334. DOI: 10.2196/jmir.7639English
吉田幸恵・中田はる佳・武藤香織(2017). 臨床試験に関与した、がん患者の語り-「治療」と「研究」を区別することの困難さに関する考察-, 生命倫理 27: 122-131. (Sachie Y, Haruka N, & Kaori M (2017) Narratives of cancer patients involved in clinical trials: The difficulty of distinguishing “therapy” from “research.”Journal of the Japan Association for Bioethics. 27: 122-131.)Japanese
中田はる佳・吉田幸恵・有田悦子・武藤香織(2017). 患者の経験からみる臨床試験への参加判断とインフォームドコンセントの意義 , 臨床薬理 48: 31-39. English translation: Haruka N, Sachie Y, Etsuko A, & Kaori M. (2017) The timing of decision-making and informed consent: Patients' perspective and experiences of clinical trials in Japan. Japanese Journal of Clinical Pharmacology and Therapeutics. 48: 31-39.)Japanese
English translation: Yi M, Jang H-Y, Woo S S, Kim HS (2017) Phenomenological study on experience of stomach cancer survivors. Journal of Korean Association for Qualitative Research. 2: 23-33.Korean
Chung, SJ. (2017) Idiom use of breast cancer patients in the disease experience. Dokil Munhak. 44: 207-226Korean
Ryan S, Hislop J & Ziebland S (2017) Do we all agree what “good health care” looks like? Views from those who are “seldom heard” in health research, policy and service improvement. Health Expectations. 20(5): 878-885. DOI: 10.1111/hex.12528.English
Knight F, Ridge D, McShane R, Ryan S & Griffith L. (2017). Care, control, and the Electroconvulsive Therapy Ritual: Making sense of polarized patient narratives. Qualitative Health Research. 27(11): 1675-1685.English
Malouf R, McLeish J, Ryan S, Gray R & Redshaw M (2017) 'We both just wanted to be normal parents’: A qualitative study of the experience of maternity care for women with learning disability. BMJ Open. 7(3). DOI: 10.1136/bmjopen-2016-015526.English
Hinton L, Tucker K L, Greenfield SM, Hodgkinson JA, Mackillop L, McCourt C, Carver T, Crawford C, Glogowska M, Locock L, Selwood M, Taylor KS & McManus RJ (2017) Blood pressure self-monitoring in pregnancy (BuMP) feasibility study: A qualitative analysis of women’s experiences of self-monitoring. BMC Pregnancy and Childbirth. 17: 427. DOI: 10.1186/s12884-017-1592-1English
2016
Pienaar K, Moore D, Fraser S, Kokanović R, Treloar C & Dilkes-Frayne E. (2016). Diffracting addicting binaries: An analysis of personal accounts of alcohol and other drug 'addiction'. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine. 21(5): 519-537.English
Stone M & Kokanović R. (2016) “Halfway towards recovery”: Rehabilitating the relational self in narratives of postnatal depression. Social Science & Medicine. 163: 98-106.English
Klůzová Kráčmarová L & Tavel P (2016) Rostoucí význam internetu jako prostředku k vyhledávání informací souvisejících se zdravím. E-psychologie. 10(1): 63-76. English translation: Klůzová Kráčmarová L & Tavel P (2016) Increasing role of the Internet as a source of information related to health. E-psychologie. 10(1): 63-76.Czech
Klůzová Kráčmarová L. (2016) Hovory o zdraví aneb Naslouchejme pacientům. English translation: Klůzová Kráčmarová L. (2016) Healthtalk - Listen to the patients. NB: The same editorial was published in several journals issued by the same publisher: 1) Praktické Lékárenství. 12(5): 159; 2) Dermatologie pro praxi 2017; 11(2); 3) Medicína pro praxi 2017; 14(2); 4) Psychiatrie pro praxi 2016; 17(3): 83; 5) Urologie pro praxi, 2016; 17(5)Czech
Breuning M, Hettmer S, Strahm B, Bengel J & Niemeyer C (2016) Krebskranke Kinder und ihre Familien:. Verständnis für das Erleben. Deutsches Ärzteblatt. 113: A 2362-3. English translation: Breuning M, Hettmer S, Strahm B, Bengel J & Niemeyer C (2016) Children with cancer and their families: Get a deeper insight in their experiences. Deutsches Ärzteblatt. 113: A 2362-3.German
Engler J, Adami S, Adam Y, Keller B, Repke T, Fügemann H et al. (2016) Using others' experiences. Cancer patients' expectations and navigation of a website providing narratives on prostate, breast and colorectal cancer. Patient Education and Counseling. 99: 1325–1332. DOI: 10.1016/j.pec.2016.03.015English
Buchmann M, Himmel, W, Lucius-Hoene G, Wermeling M (2016) Experiences of food abstinence in patients with type 2 diabetes: a qualitative study. BMJ Open. 6: e008907. DOI: 10.1136/bmjopen-2015-008907).English
中田はる佳(2016)、 被験者・家族の「思い」を知る, 薬理と治療 44(8) 1131-1134. English translation: Haruka N (2016) Understading the emotions of subjects of clinical trials and their families. Japanese Pharmacology and Therapeutics. 44(8): 225-236.Japanese
English translation: Lee M, Joung W, Hwang E-M (2016) Recovery process from depression of middle-aged low-income women in Korea through text analysis on the data of depression experience. Textlinguistics. 40: 199-223.Korean
Park E W (2016) Family relationships within diabetic patients' experiences for successful diabetes management. Family and Family Therapy. 24(3): 297-314.Korean
Ferrey AE, Hughes ND, Simkin S, Locock L, Stewart A, Kapur N, Gunnell D & Hawton K (2016) The impact of self-harm by young people on parents and families: A qualitative study. BMJ Open. 6: e009631. DOI:10.1136/bmjopen-2015-009631.English
Luchtenberg M, Maeckelberghe E, Locock L, Powell L & Verhagen AA (2016) A response to the open peer commentaries on "Young people's experiences of participation in clinical trials: Reasons for taking part". American Journal of Bioethics. 16(2): W10-2. DOI: 10.1080/15265161.2015.1125968.English
Locock N, Nettleton S, Kirkpatrick S, Ryan S, Ziebland S & Locock ML (2016) 'I knew before I was told': Breaches, cues and clues in the diagnostic assemblage. Social Science & Medicine. 154: 85-92. DOI: 10.1016/j.socscimed.2016.02.037.English
Hinton L (2016) The intensive care unit was so noisy I couldn't sleep. BMJ. 353: i2150. DOI: 10.1136/bmj.i2150. English
Darbyshire J, Grieg P, Vollam S, Young D & Hinton L (2016) “I can remember sort of vivid people…but to me they were plasticine.” Delusions on the intensive care unit: what do patients think is going on? PLOS One. 11(7): e0160296. DOI: 10.1371/journal.pone.0153775English
Prinjha S, Chapple A, Feneley R & Mangnall J (2016) Exploring the information needs of people living with a long-term indwelling urinary catheter: A qualitative study. Journal of Advanced Nursing. 72(6): 1335-1346. DOI: 10.1111/jan.12923.English
Richardson J, Liddle J, Mallen C, Roddy E, Hider S, Prinjha S & Ziebland S (2016) A joint effort over a period of time: Factors affecting use of urate-lowering therapy for long-term treatment of gout. BMC Musculoskeletal Disorders. 17: 249. DOI: 10.1186/s12891-016-1117-5.English
Searle, A., Ryan, S., Waylen, A. (2016) Health professional communication in the diagnosis and care of infants born with cleft lip and palate in the UK. Journal of Neonatal Nursing. DOI: 10.1016/j.jnn.2016.04.005English
Ashdown H, Räisänen U, Wang K, Ziebland S & Harnden A (2016) Prescribing antibiotics to ‘at-risk’ children with influenza-like illness in primary care: A qualitative study. BMJ Open. 6: e011497. DOI: 10.1136/bmjopen-2016-011497.English
Crocker JC, Boylan AM, Bostock J, & Locock L (2016) Is it worth it? Patient and public views on the impact of their involvement in health research and its assessment: A UK-based qualitative interview study. Health Expectations. 20(3): 519-528. DOI: 10.1111/hex.12479.English
Knight M, Acosta C, Brocklehurst P, Cheshire A, Fitzpatrick K, Hinton L, Jokinen M, Kemp B, Kurinczuk JJ, Lewis G, Lindquist A, Locock L, Nair M, Patel N, Quigley M, Ridge D, Sellars S & Shah A (2016) Beyond maternal death: improving the quality of maternal care through national studies of 'near-miss' maternal morbidity. NIHR Journals Library, PGfAR. 4(9). DOI: 10.3310/pgfar04090English
Ferrey AE, Hughes ND, Simkin S, Locock L, Stewart A, Kapur N, Gunnell D & Hawton K (2016) Changes in parenting strategies after a young person’s self-harm: A qualitative study. Child and Adolescent Psychiatry and Mental Health. 10(20). DOI: 10.1186/s13034-016-0110-yEnglish
Kidd J & Ziebland S (2016) Narratives of experience of mental health and illness on healthtalk.org.  BJPsych Bull. 40(5): 273-276. English
Locock L, Boylan A-M, Snow R & Staniszewska S (2016) The power of symbolic capital in patient and public involvement in health research. Health Expectations. 20(5): 836-844 English
Ziebland S, Powell J, Jenkinson C, Perera R, Martin A, Locock L, Kelly L, Newhouse N & Farmer A (2016) Examining the role of patients experiences as a resource for choice and decision-making in health care: a creative, interdisciplinary mixed-method study in digital health. Programme Grants for Applied Research. 4(17). DOI:10.3310/pgfar04170.English
Stewart A, Hughes ND, Simkin S, Locock L, Ferrey AE, Kapur N, Gunnell D, Hawton K. (2016) Navigating an unfamiliar world: How parents of young people who self-harm experience support and treatment. Child and Adolescent Mental Health. 23(2): 78-84. DOI:10.1111/camh.12205English
2015
Tudball J, Smith L, Ryan K, Williamson M & Manias E (2015) Challenges to consumers travelling with multiple medicines. Journal of Pharmaceutical Health Services Research. 6(3): 127-132.English
Smith L, Hill N & Kokanović R (2015) Experiences of depression, the role of social support and its impact on health outcomes. Journal of Mental Health. 24(6): 342-346.English
Kokanović R & Bozic-Vrbancic S (2015) Being marked as different: The emotional politics of experiences of depression and migrant belongings. Emotion, Space and Society. 16: 130-137.English
Anderson C, Kirkpatrick S, Ridge D, Kokanović R & Tanner C (2015) Starting antidepressant use: A qualitative synthesis of UK and Australian data. British Medical Journal Open. 5(12): 1-9.English
Ridge D, Kokanović R, Broom A, Kirkpatrick S, Anderson C & Tanner C (2015) “My dirty little habit”: Patient constructions of antidepressant use and the ‘crisis’ of legitimacy. Social Science & Medicine. 146: 53-61. English
Pienaar K, Fraser S, Kokanović R, Moore D, Treloar C & Dunlop A. (2015) New narratives, new selves: Complicating addiction in online alcohol and other drug resources. Addiction Research and Theory. 23(6): 499-509.English
Lucius-Hoene G, Adami S & Koschack J (2015) Narratives that matter: Illness stories in the ‘third space’ of qualitative interviewing. In: F Gygax & M Locher (eds.) Narrative Matters in Medical Contexts across Disciplines. Amsterdam: John Benjamins. pp. 99 - 116.English
Lucius-Hoene G, Breuning M & Palant A (2015) Patientenerfahrung als Ressource: die Website www.krankheitserfahrungen In: VE Amelung, S Eble, H Hildebrandt, F Knieps, R Lägel S & Ozegowski et al. (Hrsg.), Patientenorientierung. Schlüssel für mehr Qualität (Schriftenreihe des Bundesverbandes Managed Care, S. Berlin: MWV Medizinisch Wissenschaftliche Verlagsgesellschaft. pp. 248–253. English translation: Lucius-Hoene G, Breuning M & Palant A (2015) Patient experiences as a resource: The website www.krankheitserfahrungen.de. In: VE Amelung, S Eble, H Hildebrandt, F Knieps, R Lägel S & Ozegowski et al. (Hrsg.), Patientenorientierung. Schlüssel für mehr Qualität (Schriftenreihe des Bundesverbandes Managed Care, S. Berlin: MWV Medizinisch Wissenschaftliche Verlagsgesellschaft. pp. 248–253.German
Palant A, Koschack J, Rassmann S, Lucius-Hoene G, Karaus M & Himmel W (2015). "And then you start to lose it because you think about Nutella": The significance of food for people with inflammatory bowel disease - a qualitative study. BMC Gastroenterology. 15: 93. DOI: 10.1186/s12876-015-0322-2.English
Ziebland S Lavie-Ajayi M & Lucius-Hoene G (2015) The role of the Internet for people with chronic pain: Examples from the DIPEx International Project. British Journal of Pain, 9: 62–64. DOI: 10.1177/2049463714555438.English
Hughes ND, Locock L, Simkin S, Stewart A, Ferrey AE, Gunnell D, Kapur N & Hawton K (2015) Making sense of an unknown terrain: How parents understand self-harm in young people. Qualitive Health Research. 27(2):215-225. DOI: 10.1177/1049732315603032.English
Hinton L, Locock L & Knight M (2015) Maternal critical care: what can we learn from patient experience? A qualitative study. BMJ Open. 5: e006676. DOI:10.1136/bmjopen-2014-006676.English
Ziebland S & Ryan S (2015) On interviewing people with pets: Reflections from qualitative research on people with long-term conditions. Sociology of Health and Illness. 37(1): 67-80. DOI: 10.1111/1467-9566.12176. English
Locock L, & Boylan A-M (2015) Biosamples as gifts? How participants in biobanking projects talk about donation. Health Expectations. 19(4): 805-816. DOI: 10.1111/hex.12376English
Robert G, Cornwell J, Locock L, Purushotham A, Sturmey G & Gager M (2015) Patients and staff as codesigners of healthcare services. BMJ. 350: g7714. DOI: 10.1136/bmj.g7714. English
Chapple A, Ziebland S & Hawton K (2015) Taboo and the different death? Perceptions of those bereaved by suicide or other traumatic death. Sociology of Health and Illness. 37(4): 610–625. DOI: 10.1111/1467-9566.12224.English
Ferrey AE, Hawton K, Simkin S, Hughes N, Stewart A & Locock L (2015) "As a parent, there is no rulebook": A new resource for parents and carers of young people who self-harm. The Lancet Psychiatry. 2(7): 577-579. DOI: 10.1016/S2215-0366(15)00182-0English
Heaton J, Räisänen U & Salinas M (2015) ‘Rule your condition, don't let it rule you’: Young adults’ sense of mastery in their accounts of growing up with a chronic illness. Sociology of Health & Illness. 38(1): 3-20. DOI: 10.1111/1467-9566.12298.English
Hinton L, Locock L & Knight M (2015) Support for mothers and their families after life-threatening illness in pregnancy and childbirth: A qualitative study in primary care. British Journal of General Practice. 65(638): e563-e569. DOI: 10.3399/bjgp15X686461. English
Liddle J, Roddy E, Mallen CD, Hider SL, Prinjha S, Ziebland S & Richardson JC (2015) Mapping patients' experiences from initial symptoms to gout diagnosis: A qualitative exploration. BMJ Open. 5: e008323. DOI:10.1136/bmjopen-2015-008323. English
Luchtenberg M, Maeckelberghe E, Locock L, Powell L & Verhagen AA. (2015) Young people's experiences of participation in clinical trials: Reasons for taking part. American Journal of Bioethics. 15(11): 3-13. DOI: 10.1080/15265161.2015.1088974.English
Anderson C & Kirkpatrick S (2015) Narrative interviewing. International Journal of Clinical Pharmacy. 38(3): 631–634. DOI: 10.1007/s11096-015-0222-0.English
Richardson J, Liddle J, Mallen C, Roddy E, Prinjha S, Ziebland S & Hider S (2015) "Why me? I don't fit the mould ... I am a freak of nature": A qualitative study of women's experience of gout. BMC Women's Health. 15: 122. DOI: 10.1186/s12905-015-0277-z English
Simmonds R, Evans J, Feder G, Blakeman T, Lasserson D, Murray E, Bennert K, Locock L & Horwood J (2016) Understanding tensions and identifying clinician agreement on improvements to early-stage chronic kidney disease monitoring in primary care: A qualitative study. BMJ Open. 6: e010337. DOI:10.1136/bmjopen-2015-010337.English
Chapple A, Prinjha S, Feneley R & Ziebland S (2015) Drawing on accounts of long-term urinary catheter use: Design for the “seemingly mundane." Qualitative Health Research. 26(2): 154-163. DOI: 10.1177/1049732315570135English