Name: DIPEx Germany

Base: Universities of Freiburg and Gottingen.

Established: 2008 (website 2011)

Topics covered: Chronic pain, Diabetes type 2, Epilepsy, Breast cancer, Prostate cancer, Colon cancer, Chronic inflammatory bowel disease, Medical rehabilitation, Eating disorders, ADHD in children and young people.



Breuning, M., Lucius-Hoene, G., Burbaum, C., Himmel, W., & Bengel, J. (2017). Subjektive Krankheitserfahrungen und Patientenorientierung: Das Website-Projekt DIPEx Germany [Patient experiences and patient centeredness : The website project DIPEx Germany]. Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz, 60(4), 453–461. doi:10.1007/s00103-017-2524-y

Blödt S, Kaiser M, Adam Y, et al. (2018) Understanding the role of health information in patients’ experiences: secondary analysis of qualitative narrative interviews with people diagnosed with cancer in Germany. BMJ Open 8: e019576.

Giesler JM, Keller B, Repke T, et al. (2017) Effect of a Website That Presents Patients’ Experiences on Self-Efficacy and Patient Competence of Colorectal Cancer Patients: Web-Based Randomized Controlled Trial. J Med Internet Res 19: e334.

Lucius-Hoene, G., Holmberg, C., Meyer, T. (eds). Illness Narratives in Practice: Potentials and Challenges of Using Narratives in Health-related Contexts. 2018. Oxford, United Kingdom: Oxford University Press. © 2018, OUP